Así lo anticipó la Directora de Maternidad e Infancia del Hospital Lagomaggiore en un encuentro para visibilizaron los derechos de los niños con Síndrome de Down.

Con motivo de celebrarse el Día Mundial del Síndrome de Down, el Ministerio de Salud Desarrollo Social y Deportes realizó un encuentro en el Hospital Lagomaggiore. El objetivo fue compartir experiencias con padres e hijos que realizan el seguimiento en el hospital y a su vez, visibilizar los derechos de los niños y niñas que cuentan con esta condición.
El síndrome de Down siempre ha formado parte de la condición humana, existe en todas las regiones del mundo y habitualmente tiene efectos variables en los estilos de aprendizaje, las características físicas o la salud.
En 2012, la Asamblea de las Naciones Unidas declaró el 21 de marzo como el día del Síndrome de Down. Es una alteración genética causada por la existencia de material genético extra en el cromosoma 21 que se traduce en discapacidad intelectual. La incidencia estimada del Síndrome de Down a nivel mundial se sitúa entre 1 de cada 1.000 y 1 de cada 1.100 recién nacidos.
El acceso adecuado a la atención de la salud, a los programas de intervención temprana y a la enseñanza inclusiva, así como la investigación adecuada, son vitales para el crecimiento y el desarrollo de la persona.
Sobre la actividad, Mónica Rinaldi, directora de Maternidad e Infancia, sostuvo: “El lema de este año fue la inclusión de los chicos y por ello, el Hospital Lagomaggiore, a través del consultorio de Seguimiento, se invitó a todos los papás de niños que tienen Síndrome de Down. La invitación se hizo extensiva a una niña que ha formado parte de numerosas fiestas de la Vendimia, que bailó y jugó con los chicos que están en seguimiento en el hospital. También participó un chico que integra el equipo de rugby Los Cuyis, que aprovechó y contó sus experiencias a los presentes”.
Además, Rinaldi recalcó que “lo importante es que ellos tienen que ser incluidos en las actividades cotidianas ya que ellos también aportan mucho a la sociedad, por ello hay que saberlos escuchar, ya que su palabra tiene valor y tenemos que respetarlos”.
Asimismo, en el acto se aprovechó para presentar un nuevo anexo a la libreta de salud de los niños y niñas. De esta manera, se da cumplimiento a la Ley 9374 de Creación de la Hoja Anexa de Salud Individual para Niños, Niñas y Adolescentes con Enfermedades Genéticas.
“Se va a anexar una hoja para quienes tengan Síndrome de Down, que contiene los carriles de crecimiento específicos para esta enfermedad, donde se van a poder percentilar los chicos en su curva de crecimiento para poder detectar tempranamente alguna alteración en el crecimiento. Se van a entregar en las maternidades junto a un formulario para que la atención de los chicos con Síndrome de Down sea igual en todos los rincones de la provincia y donde se recordará a los pediatras cuáles son los estudios que deben realizarse en las distintas edades”, subrayó la responsable de Maternidad.
Desde el Hospital Lagomaggiore indicaron que van a estar realizando actividades con pediatras, kinesiólogos, fonoaudiólogas y van a tramitar el Certificado Único de Discapacidad.
Para mayor información, los interesados pueden contactarse al número de teléfono 3854717 del consultorio de Seguimiento del Hospital Lagomaggiore.




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